Hi all :)
For those who know us, know that Matty and I are not big on taking 'pills' for every little ache and pain that comes our way. I mean I gave birth to Huxley without any medication for goodness sakes but definitely took a full round of pain relief after! Obviously medication is needed sometimes and we've got to be thankful that we have plenty of access to whatever we need. I think that when we thought about having children we thought that they by no means would ever 'suffer' but that maybe they would adopt our philosophy of conscious medicating. However, life had other plans and Huxley has been prescribed a medication to calm his tight muscles caused by his high tone. Personally, this made me feel pretty uncomfortable and a little sad that he might need to take a pill(s) daily for one reason or another but its just one more thing to let go of and move on.
When Huxley first had seizures in the NICU he was put on Phenobarbital, a very popularly used anti-seizure medication. The day he was weaned off we were overjoyed/nervous and 'knock on wood' but we haven't had any seizures return.
Now Huxley is on a medication called 'Baclofen' and it took a little while to play with correct dosage, but since being on it we've seen him spend longer periods of time alone on his back playing on the floor, we've seen him comfortably sit crossed legged with support, he's been guiding spoonfuls of baby food up to his mouth with minimal assistance, and his hands have been much more relaxed.
Amazing.
Happy that our boy is feeling more comfortable in his body :)
<3
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